Say hello to Alex...
Alexander Timothy Camacho, Alex, was born a healthy, premature baby in April 2007 to Ben and Angie Camacho and 3-year-old Zach. While under routine premature care in the Level II nursery in OSF, the Camacho's received a devastating call from the nurses: "You need to return to the hospital immediately. Your baby is dying."
Alex, with a 10% chance of surviving, is now 11 years old. He battled through that inciting event that caused brain damage and continues to battle obstacles every day. The first three years of his life were spent in doctor's offices, resulting in evaluations that never gave his parents any comfort of hope, or even a firm diagnosis of what they were facing.
When Alex was 5 months old, his pediatrician recommended Easterseals Central Illinois for assistive therapy. Since his time with Easterseals, Alex has made great strides and reached many milestones through Feeding & Speech Therapy, Occupational Therapy, Physical Therapy, Swim Therapy and more.
Though Alex has had many diagnoses and labels, he is an extraordinary kid who has touched lives and spread joy in so many ways. He adores music, riding his bike, school and the neighbor dog, Piper.
Team Alex and Easterseals Central Illinois
While working through his initial diagnosis of Cerebral Palsy, Alex's family began to realize that Alex had visual impairment as well. At 7 months old, Alex was diagnosed with Cortical Visual Impairment (CVI), a neurological visual impairment, meaning the eyes functionally work but do not communicate with the brain effectively. This was a result of that initial episode as a newborn that caused damage to his visual centers in his brain. It was devastating news, made more so because few physicians were familiar with how to treat children with CVI, despite the fact that it is the #1 cause of blindness in children in the developed world.
With the new diagnosis, the Camacho family researched CVI and discovered that while treatment for CVI is known, it is not widely available. Determined to help other families and children in Central Illinois receive evaluation, treatment and support for CVI, Rock the Farm, a fundraising concert benefiting Easterseals Central Illinois was born. Team Alex, a team of Alex's family, produces the concert to finance and sustain the Cortical Visual Program at Easterseals Central Illinois -- benefiting Alex and many other children with this diagnosis. This is the sixth year for the concert and with steady nurturing, the growth of the CVI program will see great strides this year. Thanks to the generosity of our many community sponsors, your contributions through attending Rock the Farm or donating to Team Alex, go directly to furthering the education, awareness and treatment of CVI for many children and families. Thank you!